Your generous donation will fund our mission to further our efforts to stop DIPG/DMG in its tracks. Thank you for helping us support research, trial access, data integration and utilization.
We have experienced the pain, suffering and loss of our six years old son Ben to the deadly DIPG. In over 50 years their has been no effective treatments to survive this cruel disease. Sadly over 300 children die each year of DIPG.
DIPG has no cure, and kills more children every year than any other pediatric cancer. DIPG is underfunded with minimal awareness. The standard treatment for DIPG hasn't change in over 50 years.
Your generosity will support D.I.P.G. Clinical Research to bring an end to this cruel disease. Be a part of the BenjaminSTRONG legacy, every child deserves a CURE.🎗
Benjamin Amador also known as #Benjaminstrong was only four years old when he was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG) in Miami, Fl.
What is DIPG?
DIPG is a brain tumor found in a part of the brain stem called the pons. The pons controls balance, eyesight, speech, hearing, walking, swallowing, heartbeat, blood pressure, and breathing. Approximately 200-400 children are diagnosed with DIPG each year. These children are typically between the ages of 4-11. Brain Cancer is #1 cause of death by disease in children. To make matters worse, there has been no effective treatment for DIPG in over 30 years. Our fight started on February 2019, when Gaby and Charlie found out that their son Benjamin was diagnosed with a terminal illness. “Our world came crumbling down, but we knew we had to fight for our son all the way, and give him the best life possible” Benjamin received 42 rounds of radiation treatment at Miami Cancer Institute. He went through four surgeries 100s of hospital visit, and several rounds of chemotherapy treatment.
Despite a median survival rate of 9 months and overall survival rate of less than 1%, Ben fought like a true warrior. While facing this horrid disease, Ben inspired everyone he met through his infectious smile, strength and never-ending faith. His parents started a movement through social media #Benjaminstrong where they will post pictures of Benjamin and younger brother Brandon and raise awareness on pediatric cancer. Through this platform they were able to express that Childhood Cancer is not rare, more common than what people imagine, and the lack of treatment is mortifying.
Thousands of followers will pray daily for Benjamin. He touched so many lives and was an inspiration to all of us.
After 21 months of fiercely battling DIPG Ben gained his angel wings on November 11, 2020.
His family continues to fight in his honor by helping other families battling pediatric cancer and in search for the cure to End DIPG.
“Today and every day we will fight like BenjaminSTRONG”
The Amador Family continue to fight in honor of Benjamin's legacy. Their mission is to support families battling pediatric cancer, raise awareness on DIPG and work with innovative research trials that focus on Pediatric Brain Cancer, specifically with DIPG/DMG #1 disease killer in children.
The BenjaminSTRONG Foundation is 501(c)(3) public charity organization and was founded after our son Ben, passed away of -DIPG- Diffuse Intrinsic Pontine Glioma.